Barbara Koenig, PhD

PROF IN RES-HCOMP
Institute for Health Aging
+1 415 476-3786
Publications: 

Navigating the research-clinical interface in genomic medicine: analysis from the CSER Consortium.

Genetics in medicine : official journal of the American College of Medical Genetics

Wolf SM, Amendola LM, Berg JS, Chung WK, Clayton EW, Green RC, Harris-Wai J, Henderson GE, Jarvik GP, Koenig BA, Lehmann LS, McGuire AL, O'Rourke P, Somkin C, Wilfond BS, Burke W

Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing: Role of Demographic Factors and the Testing Experience.

The Milbank quarterly

Gollust SE, Gray SW, Carere DA, Koenig BA, Lehmann LS, McGUIRE AL, Sharp RR, Spector-Bagdady K, Wang NA, Green RC, Roberts JS

How California Prepared for Implementation of Physician-Assisted Death: A Primer.

American journal of public health

Petrillo LA, Dzeng E, Harrison KL, Forbes L, Scribner B, Koenig BA

Ten simple rules for responsible big data research.

PLoS computational biology

Zook M, Barocas S, Boyd D, Crawford K, Keller E, Gangadharan SP, Goodman A, Hollander R, Koenig BA, Metcalf J, Narayanan A, Nelson A, Pasquale F

Community recommendations on biobank governance: Results from a deliberative community engagement in California.

PloS one

Dry SM, Garrett SB, Koenig BA, Brown AF, Burgess MM, Hult JR, Longstaff H, Wilcox ES, Madrigal Contreras SK, Martinez A, Boyd EA, Dohan D

Returning Results in Biobank Research: Global Trends and Solutions.

Genetic testing and molecular biomarkers

De Clercq E, Kaye J, Wolf SM, Koenig BA, Elger BS

A taxonomy of medical uncertainties in clinical genome sequencing.

Genetics in medicine : official journal of the American College of Medical Genetics

Han PK, Umstead KL, Bernhardt BA, Green RC, Joffe S, Koenig B, Krantz I, Waterston LB, Biesecker LG, Biesecker BB

Newborn Sequencing in Genomic Medicine and Public Health.

Pediatrics

Berg JS, Agrawal PB, Bailey DB, Beggs AH, Brenner SE, Brower AM, Cakici JA, Ceyhan-Birsoy O, Chan K, Chen F, Currier RJ, Dukhovny D, Green RC, Harris-Wai J, Holm IA, Iglesias B, Joseph G, Kingsmore SF, Koenig BA, Kwok PY, Lantos J, Leeder SJ, Lewis MA, McGuire AL, Milko LV, Mooney SD, Parad RB, Pereira S, Petrikin J, Powell BC, Powell CM, Puck JM, Rehm HL, Risch N, Roche M, Shieh JT, Veeraraghavan N, Watson MS, Willig L, Yu TW, Urv T, Wise AL

The Experience of Hospital Death.

The American journal of hospice & palliative care

Carey EC, Dose AM, Humeniuk KM, Kuan YC, Hicks AD, Ottenberg AL, Tilburt JC, Koenig B

If you build it, they will come: unintended future uses of organised health data collections.

BMC medical ethics

O'Doherty KC, Christofides E, Yen J, Bentzen HB, Burke W, Hallowell N, Koenig BA, Willison DJ

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.

American journal of human genetics

Green RC, Goddard KA, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH

Communication predictors and consequences of Complementary and Alternative Medicine (CAM) discussions in oncology visits.

Patient education and counseling

Roter DL, Yost KJ, O'Byrne T, Branda M, Leppin A, Kimball B, Fernandez C, Jatoi A, Kumbamu A, Montori V, Koenig B, Geller G, Larson S, Tilburt J

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.

American journal of human genetics

Green RC, Goddard KA, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH

Parental Views on Expanded Newborn Screening Using Whole-Genome Sequencing.

Pediatrics

Joseph G, Chen F, Harris-Wai J, Puck JM, Young C, Koenig BA

Professionally Responsible Disclosure of Genomic Sequencing Results in Pediatric Practice.

Pediatrics

McCullough LB, Brothers KB, Chung WK, Joffe S, Koenig BA, Wilfond B, Yu JH

National Survey and Community Advisory Board Development for a Bipolar Disorder Biobank.

Bipolar disorders

Frye MA, Doederlein A, Koenig B, McElroy SL, Nassan M, Seymour LR, Biernacka JM, Daniels AS

The media and behavioral genetics: Alternatives coexisting with addiction genetics.

Science, technology & human values

Dingel MJ, Ostergren J, McCormick JB, Hammer R, Koenig BA

Unwarranted optimism in media portrayals of genetic research on addiction overshadows critical ethical and social concerns.

Journal of health communication

Ostergren JE, Dingel MJ, McCormick JB, Koenig BA

EngageUC: Developing an Efficient and Ethical Approach to Biobanking Research at the University of California.

Clinical and translational science

Garrett SB, Koenig BA, Brown A, Hult JR, Boyd EA, Dry S, Dohan D

Linking Broad Consent to Biobank Governance: Support From a Deliberative Public Engagement in California.

The American journal of bioethics : AJOB

Garrett SB, Dohan D, Koenig BA

Dying in the Hospital: Perspectives of family members.

Journal of palliative care

Dose AM, Carey EC, Rhudy LM, Chiu Y, Frimannsdottir K, Ottenberg AL, Koenig BA

Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research-Clinical Divide.

The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics

Wolf SM, Burke W, Koenig BA

Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.

The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics

Wolf SM, Branum R, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB, Fernandez CV, Green RC, LeRoy BS, Lindor NM, O'Rourke PP, Breitkopf CR, Rothstein MA, Van Ness B, Wilfond BS

Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death: Empirical Results from a Cancer Biobank.

The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics

Breitkopf CR, Petersen GM, Wolf SM, Chaffee KG, Robinson ME, Gordon DR, Lindor NM, Koenig BA

Have we asked too much of consent?

The Hastings Center report

Koenig BA

Challenges in translational research: the views of addiction scientists.

PloS one

Ostergren JE, Hammer RR, Dingel MJ, Koenig BA, McCormick JB

Listening in on difficult conversations: an observational, multi-center investigation of real-time conversations in medical oncology.

BMC cancer

Kimball BC, James KM, Yost KJ, Fernandez CA, Kumbamu A, Leppin AL, Robinson ME, Geller G, Roter DL, Larson SM, Lenz HJ, Garcia AA, Braddock CH, Jatoi A, de Nuncio ML, Montori VM, Koenig BA, Tilburt JC

Ethical, legal, and social implications of incorporating genomic information into electronic health records.

Genetics in medicine : official journal of the American College of Medical Genetics

Hazin R, Brothers KB, Malin BA, Koenig BA, Sanderson SC, Rothstein MA, Williams MS, Clayton EW, Kullo IJ

Stakeholder engagement: a key component of integrating genomic information into electronic health records.

Genetics in medicine : official journal of the American College of Medical Genetics

Hartzler A, McCarty CA, Rasmussen LV, Williams MS, Brilliant M, Bowton EA, Clayton EW, Faucett WA, Ferryman K, Field JR, Fullerton SM, Horowitz CR, Koenig BA, McCormick JB, Ralston JD, Sanderson SC, Smith ME, Trinidad SB

The Mayo Clinic Biobank: a building block for individualized medicine.

Mayo Clinic proceedings

Olson JE, Ryu E, Johnson KJ, Koenig BA, Maschke KJ, Morrisette JA, Liebow M, Takahashi PY, Fredericksen ZS, Sharma RG, Anderson KS, Hathcock MA, Carnahan JA, Pathak J, Lindor NM, Beebe TJ, Thibodeau SN, Cerhan JR

Point-counterpoint. Ethics and genomic incidental findings.

Science (New York, N.Y.)

McGuire AL, Joffe S, Koenig BA, Biesecker BB, McCullough LB, Blumenthal-Barby JS, Caulfield T, Terry SF, Green RC

Potential bias in the bank: what distinguishes refusers, nonresponders and participants in a clinic-based biobank?

Public health genomics

Ridgeway JL, Han LC, Olson JE, Lackore KA, Koenig BA, Beebe TJ, Ziegenfuss JY

Addiction: Current Criticism of the Brain Disease Paradigm.

AJOB neuroscience

Hammer R, Dingel M, Ostergren J, Partridge B, McCormick J, Koenig BA

The experience of addiction as told by the addicted: incorporating biological understandings into self-story.

Culture, medicine and psychiatry

Hammer RR, Dingel MJ, Ostergren JE, Nowakowski KE, Koenig BA

Addiction science, meet translational genomics.

Addiction (Abingdon, England)

Koenig BA

Managing incidental findings and research results in genomic research involving biobanks and archived data sets.

Genetics in medicine : official journal of the American College of Medical Genetics

Wolf SM, Crock BN, Van Ness B, Lawrenz F, Kahn JP, Beskow LM, Cho MK, Christman MF, Green RC, Hall R, Illes J, Keane M, Knoppers BM, Koenig BA, Kohane IS, Leroy B, Maschke KJ, McGeveran W, Ossorio P, Parker LS, Petersen GM, Richardson HS, Scott JA, Terry SF, Wilfond BS, Wolf WA

Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network.

Genetics in medicine : official journal of the American College of Medical Genetics

Fullerton SM, Wolf WA, Brothers KB, Clayton EW, Crawford DC, Denny JC, Greenland P, Koenig BA, Leppig KA, Lindor NM, McCarty CA, McGuire AL, McPeek Hinz ER, Mirel DB, Ramos EM, Ritchie MD, Smith ME, Waudby CJ, Burke W, Jarvik GP

Framing Nicotine Addiction as a "Disease of the Brain": Social and Ethical Consequences.

Social science quarterly

Dingel MJ, Karkazis K, Koenig BA

Impact of direct-to-consumer predictive genomic testing on risk perception and worry among patients receiving routine care in a preventive health clinic.

Mayo Clinic proceedings

James KM, Cowl CT, Tilburt JC, Sinicrope PS, Robinson ME, Frimannsdottir KR, Tiedje K, Koenig BA

"I felt like the angel of death": role conflicts and moral distress among allied professionals employed by the US cardiovascular implantable electronic device industry.

Journal of interventional cardiac electrophysiology : an international journal of arrhythmias and pacing

Mueller PS, Ottenberg AL, Hayes DL, Koenig BA

"Just Because We Can Doesn't Mean We Should": views of nurses on deactivation of pacemakers and implantable cardioverter-defibrillators.

Journal of interventional cardiac electrophysiology : an international journal of arrhythmias and pacing

Kramer DB, Ottenberg AL, Gerhardson S, Mueller LA, Kaufman SR, Koenig BA, Mueller PS

Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience.

Genome research

McGuire AL, Basford M, Dressler LG, Fullerton SM, Koenig BA, Li R, McCarty CA, Ramos E, Smith ME, Somkin CP, Waudby C, Wolf WA, Clayton EW

Vaccinating health care workers against influenza: the ethical and legal rationale for a mandate.

American journal of public health

Ottenberg AL, Wu JT, Poland GA, Jacobson RM, Koenig BA, Tilburt JC

Ironic technology: Old age and the implantable cardioverter defibrillator in US health care.

Social science & medicine (1982)

Kaufman SR, Mueller PS, Ottenberg AL, Koenig BA

Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium.

Genetics in medicine : official journal of the American College of Medical Genetics

Clayton EW, Smith M, Fullerton SM, Burke W, McCarty CA, Koenig BA, McGuire AL, Beskow LM, Dressler L, Lemke AA, Ramos EM, Rodriguez LL

Incidental findings in imaging research: evaluating incidence, benefit, and burden.

Archives of internal medicine

Orme NM, Fletcher JG, Siddiki HA, Harmsen WS, O'Byrne MM, Port JD, Tremaine WJ, Pitot HC, McFarland EG, Robinson ME, Koenig BA, King BF, Wolf SM

Race and ancestry in biomedical research: exploring the challenges.

Genome medicine

Caulfield T, Fullerton SM, Ali-Khan SE, Arbour L, Burchard EG, Cooper RS, Hardy BJ, Harry S, Hyde-Lay R, Kahn J, Kittles R, Koenig BA, Lee SS, Malinowski M, Ravitsky V, Sankar P, Scherer SW, Séguin B, Shickle D, Suarez-Kurtz G, Daar AS

The ethics of characterizing difference: guiding principles on using racial categories in human genetics.

Genome Biology

Lee SS, Mountain J, Koenig B, Altman R, Brown M, Camarillo A, Cavalli-Sforza L, Cho M, Eberhardt J, Feldman M, Ford R, Greely H, King R, Markus H, Satz D, Snipp M, Steele C, Underhill P

Topics in transplant ethics.

Transplantation reviews (Orlando, Fla.)

Griffin MD, Koenig BA, Schears RM

Incidental findings in CT colonography: literature review and survey of current research practice.

The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics

Siddiki H, Fletcher JG, McFarland B, Dajani N, Orme N, Koenig B, Strobel M, Wolf SM

Managing incidental findings in human subjects research: analysis and recommendations.

The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics

Wolf SM, Lawrenz FP, Nelson CA, Kahn JP, Cho MK, Clayton EW, Fletcher JG, Georgieff MK, Hammerschmidt D, Hudson K, Illes J, Kapur V, Keane MA, Koenig BA, Leroy BS, McFarland EG, Paradise J, Parker LS, Terry SF, Van Ness B, Wilfond BS

Assessing attitudes about genetic testing as a component of continuing medical education.

Academic psychiatry : the journal of the American Association of Directors of Psychiatric Residency Training and the Association for Academic Psychiatry

Mrazek M, Koenig B, Skime M, Snyder K, Hook C, Black J, Mrazek D

Ethical issues in stopping randomized trials early because of apparent benefit.

Annals of internal medicine

Mueller PS, Montori VM, Bassler D, Koenig BA, Guyatt GH

Family member involvement in hastened death.

Death studies

Starks H, Back AL, Pearlman RA, Koenig BA, Hsu C, Gordon JR, Bharucha AJ

Nicotine addiction through a neurogenomic prism: ethics, public health, and smoking.

Nicotine & tobacco research : official journal of the Society for Research on Nicotine and Tobacco

Caron L, Karkazis K, Raffin TA, Swan G, Koenig BA

Motivations for physician-assisted suicide.

Journal of general internal medicine

Pearlman RA, Hsu C, Starks H, Back AL, Gordon JR, Bharucha AJ, Koenig BA, Battin MP

Advertising, patient decision making, and self-referral for computed tomographic and magnetic resonance imaging.

Archives of internal medicine

Illes J, Kann D, Karetsky K, Letourneau P, Raffin TA, Schraedley-Desmond P, Koenig BA, Atlas SW

Genetic research and health disparities.

JAMA

Sankar P, Cho MK, Condit CM, Hunt LM, Koenig B, Marshall P, Lee SS, Spicer P

Accounting for culture in a globalized bioethics.

The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics

Marshall P, Koenig B

Environmental and genetic determinants of tobacco use: methodology for a multidisciplinary, longitudinal family-based investigation.

Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology

Swan GE, Hudmon KS, Jack LM, Hemberger K, Carmelli D, Khroyan TV, Ring HZ, Hops H, Andrews JA, Tildesley E, McBride D, Benowitz N, Webster C, Wilhelmsen KC, Feiler HS, Koenig B, Caron L, Illes J, Cheng LS

Self-referred whole-body CT imaging: current implications for health care consumers.

Radiology

Illes J, Fan E, Koenig BA, Raffin TA, Kann D, Atlas SW

Qualitative methods in end-of-life research: recommendations to enhance the protection of human subjects.

Journal of pain and symptom management

Koenig BA, Back AL, Crawley LM

Planning the genome institute's future.

Science (New York, N.Y.)

Uhlmann WR, Bennett R, Botkin JR, Botstein D, Boughman JA, Chakravarti A, Clayton EW, Kahn J, Koenig B, Murray TH, Olson MV, Rowley J, Terry S, Valle D

Dead donors and the "shortage" of human organs: are we missing the point?

The American journal of bioethics : AJOB

Koenig BA

Strategies for culturally effective end-of-life care.

Annals of internal medicine

Crawley LM, Marshall PA, Lo B, Koenig BA

Brain science and social policy.

Cerebrum : the Dana forum on brain science

Koenig BA, Greely H, Schacter DL, Winslade WJ, Mobley W

The meanings of "race" in the new genomics: implications for health disparities research.

Yale journal of health policy, law, and ethics

Lee SS, Mountain J, Koenig BA

Why not grant primacy to the family?

The American journal of bioethics : AJOB

Koenig BA

Ethical decision making and patient autonomy: a comparison of physicians and patients in Japan and the United States.

Chest

Ruhnke GW, Wilson SR, Akamatsu T, Kinoue T, Takashima Y, Goldstein MK, Koenig BA, Hornberger JC, Raffin TA

Participation in the cooperative family registry for breast cancer studies: issues of informed consent.

Journal of the National Cancer Institute

Daly MB, Offit K, Li F, Glendon G, Yaker A, West D, Koenig B, McCredie M, Venne V, Nayfield S, Seminara D

Multicultural considerations in the use of advance directives.

Oncology nursing forum

Ersek M, Kagawa-Singer M, Barnes D, Blackhall L, Koenig BA

Informed consent in a multicultural cancer patient population: implications for nursing practice.

Nursing ethics

Barnes DM, Davis AJ, Moran T, Portillo CJ, Koenig BA

Genetic testing for BRCA1 and BRCA2: recommendations of the Stanford Program in Genomics, Ethics, and Society. Breast Cancer Working Group.

Journal of women's health / the official publication of the Society for the Advancement of Women's Health Research

Koenig BA, Greely HT, McConnell LM, Silverberg HL, Raffin TA

Ethical decision-making in critical care in Hong Kong.

Critical care medicine

Ip M, Gilligan T, Koenig B, Raffin TA

The difference that culture can make in end-of-life decisionmaking.

Cambridge quarterly of healthcare ethics : CQ : the international journal of healthcare ethics committees

Hern HE, Koenig BA, Moore LJ, Marshall PA

Report of the Northern California Conference for Guidelines on Aid-in-Dying: definitions, differences, convergences, conclusions.

The Western journal of medicine

Young EW, Marcus FS, Drought T, Mendiola M, Ciesielski-Carlucci C, Alpers A, Eaton M, Koenig BA, Loewy E, Raffin TA, Ross C

Understanding the practice of ethics consultation: results of an ethnographic multi-site study.

The Journal of clinical ethics

Kelly SE, Marshall PA, Sanders LM, Raffin TA, Koenig BA

The power (and limits) of proximity.

The Hastings Center report

Koenig BA

Advance directives. Changing our expectations.

Chest

Drought TS, Koenig BA, Raffin TA

Understanding cultural difference in caring for dying patients.

The Western journal of medicine

Koenig BA, Gates-Williams J

Organ transplantation (re)examined?

Medical anthropology quarterly

Koenig BA, Hogle LF

Cultural aspects of nondisclosure.

Cambridge quarterly of healthcare ethics : CQ : the international journal of healthcare ethics committees

Orona CJ, Koenig BA, Davis AJ

AIDS and ethics.

Issues in science and technology

Jonsen AR, Cooke M, Koenig BA