Daniel Dohan, PhD

Prof in Residence
Institute for Health Policy Studies
+1 415 476-0751

Dan Dohan is Professor of Health Policy, Surgery, and Humanities and Social Sciences at the Philip R. Lee Institute for Health Policy Studies. He received his PhD in sociology from UC Berkeley. His publications address medical sociology, health policy, culture and inequality, and ethnographic research methods. He has written one book, The Price of Poverty: Money, Work, and Culture in the Mexican-American Barrio (UC Press 2003).

Dan directs the Medical Cultures Lab (https://www.cultureofmedicine.org). MCL seeks to understand medical culture and advance health equity. The Lab includes approximately 30 core members including faculty, post-doctoral scholars, non-faculty academics, and research staff and more than 50 affiliated members. MCL maintains a consulting and recharge mechanism to support qualitative and ethnographic research. Investigators can visit our website to learn more about how we support qualitative project design, data collection, data management, and data analysis. We particularly encourage inquiries from investigators whose work or career includes a health equity focus. MCL's work is supported by a mid-career award to Dan from the NIA.

As an individual investigator, Dan leads/co-leads three studies. He is PI of an NIA-funded comparative ethnographic study of experiences of aging and cognitive decline in diverse communities. With Emily Finlayson, he is co-PI of an NCI study of surgery in older adults. They are examining ways to make frailty assessment a routine part of the surgical visit. Finally, with Winston Chiong, he is co-PI of an NIH study about new technologies for treating neurological conditions, including treatments that involve implanting computers in the brain. Their study asks, what are the social implications of these new approaches to epilepsy and other conditions?


Patient experiences of resection versus responsive neurostimulation for drug-resistant epilepsy.

Epilepsy & behavior : E&B

Haeusermann T, Liu EY, Fong KC, Dohan D, Chiong W

How older men live with stress urinary incontinence: Patient experience and navigation to treatment.

Neurourology and urodynamics

Shaw NM, Breyer BN, Walter LC, Sudore RL, Suskind AM, Baussan C, Quanstrom K, Allen IE, Cooperberg MR, Dohan D, Hampson LA

Primary Care Pracitioner Perspectives on the Role of Primary Care in Dementia Diagnosis and Care.

JAMA network open

Sideman AB, Ma M, Hernandez de Jesus A, Alagappan C, Razon N, Dohan D, Chodos A, Al-Rousan T, Alving LI, Segal-Gidan F, Rosen H, Rankin KP, Possin KL, Borson S

Hospital Culture and Intensity of End-of-Life Care at 3 Academic Medical Centers.

JAMA internal medicine

Dzeng E, Batten JN, Dohan D, Blythe J, Ritchie CS, Curtis JR

Patient-Identified Treatment Attributes among Older Men with Stress Urinary Incontinence: A Qualitative Look at What Matters to Patients Making Treatment Decisions.


Hampson LA, Shaw N, Breyer BN, Walter LC, Sudore RL, Cooperberg MR, Baussan C, Quanstrom K, Elaine Allen I, Dohan D

The relationship between frailty, incontinence severity, and treatment decisions for men with post-prostatectomy stress urinary incontinence: a mixed methods analysis.

Translational Andrology and Urology

Jones CP, Shaw NM, Mena J, Breyer BN, Walter LC, Baussan C, Quanstrom K, Allen IE, Dohan D, Hampson LA

'It was a great brain, and I miss it': lay perspectives on postoperative cognitive dysfunction.

British journal of anaesthesia

Li L, Dohan D, Smith AK, Whitlock EL

Prosthesis preferences for those with upper limb loss: Discrete choice study of PULLTY� for use in regulatory decisions.

Journal of rehabilitation and assistive technologies engineering

Wilson L, Dohan D, Garibaldi M, Szeto D, Timmerman M, Matheny J

Perceptions of and Knowledge Acquisition about Brain Health and Aging among Latin American Immigrants:A QualitativePaper.

Clinical gerontologist

Light SW, Dohan D, Possin KL, Wolf MS, Rankin KP, Lanata S, Sideman AB

"I Didn't Sign Up for This": Perspectives from Persons Living with Dementia and Care Partners on Challenges, Supports, and Opportunities to Add Geriatric Neuropalliative Care to Dementia Specialty Care.

Journal of Alzheimer's disease : JAD

Harrison KL, Garrett SB, Halim M, Bernstein Sideman A, Allison TA, Dohan D, Naasan G, Miller BL, Smith AK, Ritchie CS

Mentoring Relationships and Gender Inequities in Academic Medicine: Findings From a Multi-Institutional Qualitative Study.

Academic medicine : journal of the Association of American Medical Colleges

Murphy M, Record H, Callander JK, Dohan D, Grandis JR

Closed-Loop Neuromodulation and Self-Perception in Clinical Treatment of Refractory Epilepsy.

AJOB neuroscience

Haeusermann T, Lechner CR, Fong KC, Bernstein Sideman A, Jaworska A, Chiong W, Dohan D

An Interprofessional Process for the Limitation of Life-Sustaining Treatments in France.

Journal of pain and symptom management

Blythe JA, Kentish-Barnes N, Debue AS, Dohan D, Azoulay E, Covinsky K, Matthews T, Curtis JR, Dzeng E

The Role of Spirituality in Conceptualizations of Health Maintenance and Healthy Aging Among Latin American Immigrants.

The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry

Weiner-Light S, Rankin KP, Lanata S, Possin KL, Dohan D, Bernstein Sideman A

A Qualitative Analysis of Ethical Perspectives on Recruitment and Consent for Human Intracranial Electrophysiology Studies.

AJOB neuroscience

Mergenthaler JV, Chiong W, Dohan D, Feler J, Lechner CR, Starr PA, Arias JJ

Rapid transition of a preclinical health systems science and social justice course to remote learning in the time of coronavirus.

Medical education online

Garg M, Eniasivam A, Satterfield J, Norton B, Austin E, Dohan D

Understanding Experiences of Moral Distress in End-of-Life Care Among US and UK Physician Trainees: a Comparative Qualitative Study.

Journal of general internal medicine

Rosenwohl-Mack S, Dohan D, Matthews T, Batten JN, Dzeng E

Using care navigation to address caregiver burden in dementia: A qualitative case study analysis.

Alzheimer's & dementia (New York, N. Y.)

Bernstein A, Merrilees J, Dulaney S, Harrison KL, Chiong W, Ong P, Heunis J, Choi J, Walker R, Feuer JE, Lee K, Dohan D, Bonasera SJ, Miller BL, Possin KL

Patient and clinician perspectives on a patient-facing dashboard that visualizes patient reported outcomes in rheumatoid arthritis.

Health expectations : an international journal of public participation in health care and health policy

Liu LH, Garrett SB, Li J, Ragouzeos D, Berrean B, Dohan D, Katz PP, Barton JL, Yazdany J, Schmajuk G

Before Consent: Qualitative Analysis of Deliberations of Patients With Advanced Cancer About Early-Phase Clinical Trials.

Journal of oncology practice

Garrett SB, Matthews TM, Abramson CM, Koenig CJ, Hlubocky FJ, Daugherty CK, Munster PN, Dohan D

Beyond exploratory: a tailored framework for designing and assessing qualitative health research.

BMJ open

Rendle KA, Abramson CM, Garrett SB, Halley MC, Dohan D

The Role of Care Navigators Working with People with Dementia and Their Caregivers.

Journal of Alzheimer's disease : JAD

Bernstein A, Harrison KL, Dulaney S, Merrilees J, Bowhay A, Heunis J, Choi J, Feuer JE, Clark AM, Chiong W, Lee K, Braley TL, Bonasera SJ, Ritchie C, Dohan D, Miller BL, Possin KL

Approaches to decision-making among late-stage melanoma patients: a multifactorial investigation.

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Garrett SB, Abramson CM, Rendle KA, Dohan D

Older Adult and Surrogate Perspectives on Serious, Difficult, and Important Medical Decisions.

Journal of the American Geriatrics Society

Petrillo LA, McMahan RD, Tang V, Dohan D, Sudore RL

Standard Versus Simplified Consent Materials for Biobank Participation: Differences in Patient Knowledge and Trial Accrual.

Journal of empirical research on human research ethics : JERHRE

Garrett SB, Murphy M, Wiley J, Dohan D

Homing in on the Social: System-Level Influences on Overly Aggressive Treatments at the End of Life.

Journal of pain and symptom management

Dzeng E, Dohan D, Curtis JR, Smith TJ, Colaianni A, Ritchie CS

What advanced cancer patients with limited treatment options know about clinical research: a qualitative study.

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Garrett SB, Koenig CJ, Trupin L, Hlubocky FJ, Daugherty CK, Reinert A, Munster P, Dohan D

Development of an adaptive, personalized, and scalable dementia care program: Early findings from the Care Ecosystem.

PLoS medicine

Possin KL, Merrilees J, Bonasera SJ, Bernstein A, Chiong W, Lee K, Wilson L, Hooper SM, Dulaney S, Braley T, Laohavanich S, Feuer JE, Clark AM, Schaffer MW, Schenk AK, Heunis J, Ong P, Cook KM, Bowhay AD, Gearhart R, Chodos A, Naasan G, Bindman AB, Dohan D, Ritchie C, Miller BL

Community recommendations on biobank governance: Results from a deliberative community engagement in California.

PloS one

Dry SM, Garrett SB, Koenig BA, Brown AF, Burgess MM, Hult JR, Longstaff H, Wilcox ES, Madrigal Contreras SK, Martinez A, Boyd EA, Dohan D

Engaging Diverse Stakeholders to Inform Biobank Governance.

Biopreservation and biobanking

Murphy M, Garrett SB, Boyd E, Dry S, Dohan D

Interest in initiating an early phase clinical trial: results of a longitudinal study of advanced cancer patients.


Dunn LB, Wiley J, Garrett S, Hlubocky F, Daugherty C, Trupin L, Munster P, Dohan D

The Importance Of Integrating Narrative Into Health Care Decision Making.

Health affairs (Project Hope)

Dohan D, Garrett SB, Rendle KA, Halley M, Abramson C


Sociological methodology

Abramson CM, Dohan D

Defining competencies for education in health care value: recommendations from the University of California, San Francisco Center for Healthcare Value Training Initiative.

Academic medicine : journal of the Association of American Medical Colleges

Moriates C, Dohan D, Spetz J, Sawaya GF

EngageUC: Developing an Efficient and Ethical Approach to Biobanking Research at the University of California.

Clinical and translational science

Garrett SB, Koenig BA, Brown A, Hult JR, Boyd EA, Dry S, Dohan D

Linking Broad Consent to Biobank Governance: Support From a Deliberative Public Engagement in California.

The American journal of bioethics : AJOB

Garrett SB, Dohan D, Koenig BA

Oncologist factors that influence referrals to subspecialty palliative care clinics.

Journal of oncology practice

Schenker Y, Crowley-Matoka M, Dohan D, Rabow MW, Smith CB, White DB, Chu E, Tiver GA, Einhorn S, Arnold RM

Developing a CKD registry in primary care: provider attitudes and input.

American journal of kidney diseases : the official journal of the National Kidney Foundation

McBride D, Dohan D, Handley MA, Powe NR, Tuot DS

Overcoming challenges to adoption of shared medical appointments.

Population health management

McCuistion MH, Stults CD, Dohan D, Frosch DL, Hung DY, Tai-Seale M

Recognition as a patient-centered medical home: fundamental or incidental?

Annals of family medicine

Dohan D, McCuistion MH, Frosch DL, Hung DY, Tai-Seale M

Clinical trial discussion, referral, and recruitment: physician, patient, and system factors.

Cancer causes & control : CCC

Kaplan CP, Nápoles AM, Dohan D, Shelley Hwang E, Melisko M, Nickleach D, Quinn JA, Haas J

"Thinking about it for somebody else": Alzheimer's disease research and proxy decision makers' translation of ethical principles into practice.

The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry

Dunn LB, Fisher SR, Hantke M, Appelbaum PS, Dohan D, Young JP, Roberts LW

Alternative decision-makers' perspectives on assent and dissent for dementia research.

The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry

Overton E, Appelbaum PS, Fisher SR, Dohan D, Roberts LW, Dunn LB

"It hurts to know... and it helps": exploring how surrogates in the ICU cope with prognostic information.

Journal of palliative medicine

Schenker Y, White DB, Crowley-Matoka M, Dohan D, Tiver GA, Arnold RM

I don't want to be the one saying 'we should just let him die': intrapersonal tensions experienced by surrogate decision makers in the ICU.

Journal of general internal medicine

Schenker Y, Crowley-Matoka M, Dohan D, Tiver GA, Arnold RM, White DB

Patient perceptions of reproductive health counseling at the time of cancer diagnosis: a qualitative study of female California cancer survivors.

Journal of cancer survivorship : research and practice

Niemasik EE, Letourneau J, Dohan D, Katz A, Melisko M, Rugo H, Rosen M

How a cancer education group serves the underserved: 'family' ties and battling cancer.

Patient education and counseling

Dohan D, Szolarova R, Walcer B

Demanding patient or demanding encounter?: A case study of a cancer clinic.

Social science & medicine (1982)

Stacey CL, Henderson S, MacArthur KR, Dohan D

Social stigma and the dilemmas of providing care to substance users in a safety-net emergency department.

Journal of health care for the poor and underserved

Henderson S, Stacey CL, Dohan D

Genetic testing for vulnerable populations: what kinds of communication we need and do not need.

The American journal of bioethics : AJOB

Schillinger D, Dohan D

Public reporting and pay-for-performance: safety-net hospital executives' concerns and policy suggestions.

Inquiry : a journal of medical care organization, provision and financing

Goldman LE, Henderson S, Dohan DP, Talavera JA, Dudley RA

Changing patterns of addiction and public aid receipt: tracking the unintended consequences of welfare reform.

Journal of health politics, policy and law

Schmidt LA, Wiley J, Dohan D, Zabkiewicz D, Jacobs LM, Henderson S, Zivot M

Barriers to Identifying Substance Abuse in the Reformed Welfare System

Social Service Review

Henderson, S., Dohan, D., Schmidt, L.

Contemporary Drug Problems

From Enabling to Bootstrapping: Welfare Workers' Views of Substance Abuse and Welfare Reform

Dohan, D., Schmidt, L., Henderson, S.

Addiction and Welfare Dependency: Interpreting the Connection

Social problems

Schmidt, L., Dohan, D., Wiley, J., Zabkiewicz, D.

Emergency department closures: policy issues.

Journal of emergency nursing: JEN : official publication of the Emergency Department Nurses Association

Malone RE, Dohan D

Using Computers to Analyze Ethnographic Field Data: Theoretical and Practical Considerations

Annual Review of Sociology

Dohan, D. and Sánchez-Jankowski, M.